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13【聊了什么 The What】
四月是孤独症接纳月，从提升意识到真正接纳，我们还要走多少弯路？本期节目，主播八如邀请到Jayne与5岁半神经多样性男孩"小熊"的妈妈Anqi，围绕孤独症谱系展开了一场真实而温柔的对话。当我们说一个孩子"有问题"时，我们到底是在描述他，还是在描述我们无法理解他的方式？重复动作、情绪崩溃、社交困难、对环境过度敏感……它们不一定是"问题行为"，而可能是孩子在用自己的方式调节世界、表达压力，甚至求救。对神经多样性保持包容，不只是为了这些孩子，更是在帮我们每一个人，与那个从未被好好对待过的内心小孩重新和解。孤独症谱系广阔而多元，本期嘉宾们的经历与视角只是其中一隅，无法代表所有人的生命体验，但在残言片语，每一个故事，都值得被认真倾听。
April is National Autism Acceptance Month. From raising awareness to genuine acceptance, how many detours still lie ahead? In this episode, host Baru sits down with Jayne and Anqi—mother of Xiǎo Xióng, a 5-and-a-half-year-old neurodivergent boy—for a candid, tender conversation about the autism spectrum. When we say a child "has a problem," are we really describing them, or are we describing our own inability to understand them? Repetitive movements, emotional meltdowns, social difficulties, sensory overwhelm—these aren't necessarily "problem behaviors." They may be a child's own way of regulating their world, expressing stress, or even reaching out for help.Holding space for neurodiversity isn't just for these children. It helps each of us make peace with the inner child who was never quite met with the care they needed. The autism spectrum is vast and varied. The experiences and perspectives our guests share are only one small corner of it, and can't speak for every life lived on the spectrum. But in these fragments of conversation, every story deserves to be heard with care.
【时间轴 The When】
00:00:00 开场介绍
00:01:23 什么是孤独症谱系？
00:01:57 安琪的"发现时刻"①：睡眠挑战
00:06:41 安琪的"发现时刻"②：旅行中的感官世界
00:10:27 作为成年ASD女性的成长经历
00:17:16 为什么选择不给小熊确诊？
00:25:28 社交与语言：来有往的对话很难
00:42:24 大众刻板印象 vs. 真实谱系
00:49:36 作为家长，我希望获得什么支持？
01:05:12 对非神经多样性人士说的话
00:00:00 Intro & Guest Introductions
00:01:23 What Is Autism Spectrum Disorder
00:01:57 Moment of Recognition ①: Sleep Struggles
00:06:41 Moment of Recognition ②: Sensory Sensitivities While Traveling
00:10:27 Growing Up Undiagnosed as an Autistic Woman
00:17:16 Why No Formal Diagnosis for Xiǎo Xióng?
00:25:28 Social & Language Challenges: The Art of Back-and-Forth
00:42:24 Stereotypes vs. the Real Spectrum
00:49:36 What Support Do Neurodivergent Families Need?
01:05:12 A Message to Neurotypical People
【我们是谁 Who We Are】
残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。
“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.
八如：INFJ听人，艺术家兼美国聋校教师。
Jayne：与前庭型偏头痛和单侧听损生活共存二十年，工程师/life coach/女性主义社群主理人。
Anqi: 五岁神经多元男孩的妈妈。
Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality.
Jayne: Co-existing vestibular migraine and unilateral hearing loss for twenty years; engineer, life coach, and founder of a feminist community.
Anqi: Mother of a five year old neuron divergent child.
【支持我们 Please Support Us】
如果喜欢这期节目并愿意支持我们：
- 海外用户：patreon.com/disabledtalks
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- 商务合作邮箱：disabled.talks.pod@gmail.com
If you like our show and want to support us, please consider the following:
- Those Abroad: patreon.com/disabledtalks
- Those in China: afdian.com/a/disabledtalks
- Business Inquiries Email: disabled.talks.pod@gmail.com
